AHIMA supports the right of individuals to access their accurate and complete health information in a timely manner. Health information (HI) professionals are the frontline professionals when individuals seek access to their health information, and they have the expertise and knowledge to inform and enhance public policy that seeks to improve individuals’ access to their health information. To enhance individuals’ access to their information, AHIMA believes that public policy that seeks to increase and automate individual access to health information must:
Policy must ensure that an individual has the right to access their health information regardless of where it is captured, stored, or exchanged.
Policy must take into account existing workflows and processes and allow providers to streamline and make their workflows and processes more transparent for patients.
Policy must encourage adoption and implementation of APIs and standards, such as fast healthcare interoperability resources (FHIR) to foster the development of new applications (“apps”) and services that facilitate an individual’s seamless electronic access to and control of their health information. This includes the adoption of appropriate privacy and information security policies that ensure the privacy, confidentiality, and security of health information.
Policy must encourage a consistent, standardized interpretation of the designated record set (DRS) across federal agencies to reduce discrepancies between institutions, providers, and other stakeholders in the access, exchange, and use of electronic health information (EHI). Such interpretation must expand over time to include additional data elements, as standards to support such elements become electronically available and capable of being deployed.
New standards and approaches must recognize the expertise HI professionals have in facilitating and supporting individuals’ access to their health information while adhering to state and federal requirements.
The ability of individuals and their caregivers to access, exchange, and use their health
information is essential to managing their care. Today, nearly all hospitals provide patients with
the ability to electronically view and download their health information.1 However, despite these
technological advances and the right of individuals to access their health information under the
Health Insurance Portability and Accountability Act (HIPAA), individuals continue to struggle
with accessing their health information in a manner that is seamless, timely, and electronic.
Enhancing individuals’ access to their health information could yield significant benefits,
including improved patient outcomes and enhanced patient safety. However, certain challenges
must be addressed including cumbersome, opaque record request processes for individuals. As
policymakers aim to address this important issue, AHIMA members have the expertise to offer
Today, the record request process may involve logging into a patient portal or going online, downloading an authorization form, printing it, and then mailing or faxing it in. On other occasions it may involve travelling to the provider’s location and filling out a form in person.
New approaches to improving individuals’ access to their health information will require appropriate training and policies for patient-facing staff to reduce discrepancies in how requests are processed and fulfilled.
New approaches will require greater transparency regarding what information may be released, how it can berequested, the status of an individual’s request, how long the process takes, whether additional information may be required to process the request, and the potential costs associated with the record request.
New approaches must take into account practices intended to protect the confidentiality of an individual’s health information in accordance with state or federal laws, while streamlining existing workflows to expedite an individual’s request for his or her health information.
Healthcare organizations have interpreted differently and applied inconsistently information that may be included in the DRS. This variation has not only led to discrepancies and confusion in the information provided to individuals during the medical records release process but could lead to confusion and inconsistent application of the definition of EHI under the ONC Cures Act Final Rule.
Including geographic location, socio-demographic characteristics, internet access and use, and health conditions.
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January 5, 2021
AHIMA calls for the incoming administration to consider the implications of health information as they begin to implement new health policies in 2021.
AHIMA Advocacy in Action - Individual Access to Health Information
October 29, 2020
“The American Health Information Management Association (AHIMA) supports efforts from the Office of the National Coordinator for Health Information Technology (ONC) to ensure that individuals can access, exchange and use electronic health information."
March 9, 2020
“We look forward to reviewing the final rule in greater detail. We support the intent of the Cures Act to eradicate practices that unreasonably limit the access, exchange and use of electronic health information for authorized and permitted purposes including patient access to their health information."